Question : How does Thalassaemia impact on your life.

[caraiti]

There are some of you who come and add comments to this group's discussion and I would like to know....

Is there someone in your life who has Thalassaemia or is it a topic that interests you.
I read through the topics and can't help but feel that this is all about me.
Although I know you are interested in how I cope and I try to quench your questions, My question is how does Thalassaemia impact on your life. If it is an interest, what about Thalassaemia interests you.
I'm hoping that you can fill me in on how things are with you all and whether I am answering your questions.
Again I will always give you my life experiences but when ever I can I will try to get more info.
The only thing I can't seem to get alot of is other Thalassaemics. Apart from email contacts from other countries, there are none that I have personal face to face contact.
Apologises

[amanda]

For me personally it gives me inspiration. For how strong you are to manage thalassemia. I know you feel like being watch all the time, but for us we people who cares for you and we want to know the update and condition you have right now.. Big Impact in a sense of i am still lucky enough. Every details you share brighten my life and give me much more reason to continue in life. God has it's reasons why we are here. You know why your here? to give some of us an inspiration and to let them know that in life there is no such word as "GIVING UP".

[caraiti]

Haha thanks for your kind words.
The other way I look at it is that I am also here to annoy my family, friends and husband.
It is my job to keep them on their toes and also to show humility.
I owe alot to my supporters as they are the ones who have the joy of loving and knowing me at my worst.