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Thalassaemia & G6PD attention k800i
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Topic: Thalassaemia & G6PD attention k800i (Read 1041 times)
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caraiti
Thalassaemia Support Group Moderator
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Age: 40
Location: Otahuhu, Auckland, New Zealand
Posts: 145
Thalassaemic & Proud
Thalassaemia & G6PD attention k800i
«
on:
April 16, 2009, 05:04:17 pm »
k800i
Information I found in regards to Thalassaemia & G6PD.
I'm sorry I have taken awhile to get some info.
Hope all is well
G6PD deficiency and beta thalassemia have no relation to each other and neither condition would have an effect on the other. Some basics. If you have a child with a thal major, all of your children will be thal minors (carriers). This may or may not cause some symptoms of anemia, depending on how high the hemoglobin level can be maintained. The odds are that 50% of your male children would have G6PD deficiency and 50% of female children would be unaffected carriers. G6PD deficiency. also known as favism, can have no symptoms or there can be hemolytic episodes caused by ingestion of fava beans and certain drugs. A complete overview can be seen at http://drug.pharmacy.psu.ac.th/wbfile/159254520461.pdf
Most people with G6PD deficiency will have no problems as long as the precautions described on that page are followed.
So, your children would be like hundreds of millions of other people on earth who are thalassemia carriers. There would be no added danger if they carried both thal trait and G6PD.
What you need to find out from the man who has asked for your hand is what condition his health is and is he compliant with his treatment regimen. If he is compliant and has low iron stores and no other health problems, there is no reason that he cannot continue to have a full healthy life. The treatment available for thalassemia today has completely changed the long term prognosis for thals, as long as they comply with their treatment. Please be aware that treatment does take up some time and that there are routine annual tests that should be done. However, we know many patients who work full time and have lovely families. As long as this man is compliant with his treatment regimen, there should be no medical reason to not marry him.
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Last Edit: April 16, 2009, 05:08:13 pm by caraiti
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