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Author Topic: Coping with the chelation  (Read 2255 times)
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caraiti Topic starter
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Location: Otahuhu, Auckland, New Zealand
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« on: August 07, 2008, 02:37:57 pm »

Since Monday I have been using a slightly longer thumb type needle in my leg.
Kind donation from Thalpal.
Although the needle is slightly longer it is pretty much the same as it does the same job.
I have noticed however that my legs aren't as swollen as with the other needle which I quite like.
Last night however I got abit of my muscle. I knew this as soon as I stood up...it hurt. Yeowh!
That was my first mistake...
the second was deciding to leave it and not change the site. Tongue
Yeah I was pretty tired and just thought nope... I'm going to bed.
This morning I was limping Undecided but went to work anyway.
I was okay most of the day except when I had to walk and bend down.
I am at home now and I will be putting a tepid face cloth on the site to cool it down.
My leg feels ultra hot.
Then I will be putting hirudoid cream on the site.
After my self maintenace... The needle will be hitting the other leg. Shocked
Some of you might be suggesting other sites but from experience...
one night in my arm...made that arm hard to use for a minimum of three days,
legs are no good only thighs as it needs to go subcut. (If there is no meat, like a foot...then it really hurts).
Backside... only in the weekends ( I need to sit with the students) hahaha
Stomach.... reserved for insulin Grin
So its back to my thights.
I'm not using my port for this at the moment as I have a virus and I don't want my port contaminated.
Not to mention it needs a rest as the desferal irritates that as well.
Hahaha.. What a life!... but at least I'm alive Grin
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Thalassaemia is a lifestyle not a burden.
kkmalaysia
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« Reply #1 on: August 15, 2008, 08:58:50 am »

Is your treatment subsidised? How much does it cost you per month?
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caraiti Topic starter
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Location: Otahuhu, Auckland, New Zealand
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« Reply #2 on: August 15, 2008, 04:33:10 pm »

Yes it is subsidised and I pay $15 for each item on my scripts which normally have 8 items.
Lucky it is subsidised because 10 vials of desferal cost @ $30.
Prices could have gone up but that was the rate a few years ago.
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Thalassaemia is a lifestyle not a burden.
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