Thalagen Gene Therapy Treatment insert from Thalpal

[caraiti]

Errant Gene Therapeutics, LLC™, hopes to begin Thalagen™: Gene Therapy Treatment for Thalassemia trials by June 2008.
We hope to be in our first patients by June of '08'. 5 patients will be treated at Sloan Kettering and  5 at NIH.
$3,000,000 will be needed to get this going. Some funding will surely come from government and also private foundations and donors, but much more will be needed, so think about ordering the cd. 100% of the money raised will go towards this effort. Ask your friends and family to order the cd.

http://www.myspace.com/patgirondi

 Thanks.
 pat girondi CEO of EGT

[amanda]

Scientists are working to develop a gene therapy that may offer a cure for thalassemia. Such a treatment might involve inserting a normal beta globin gene (the gene that is abnormal in this disease) into the patient's stem cells, the immature bone marrow cells  that are the precursors of all other cells in the blood.

[caraiti]

Well done. That has been in the making for awhile.
They have been doing this treatment on babies for years but not adults.
They have had success with babies because of the fetal haemaglobin.
There have been major break throughs with technology.
Thay have now started on adults but as I said before the risks out weight the cure.

Senario 1 You have the operation but complications arise.
Senario 2 You survive the operation but end up still Thalassaemic
Senario 3 You have the operation, all goes well and no more Transfusion..etc

My concern as well as my haematologists is that the risk is too high that I will not survive the operation.
The percent given that all goes well was around 30%

For each Thalassaemic, it is a decison that needs to be research and discussed at length with their Haematologist. I have made my decision that I would rather be alive than buried.
The risks are too high at this stage.