Leave your thoughts, poems, songs anything you like here.

[caraiti]

Today I had a visit from my birth dad. It is always good to see him but today he told me about a question my 28 yr half sister had asked him.

"Dad, with all the problems Cherie has to deal with, does she resent you and her mother?"

My father being a comedian replied, "Its better than the alternative"
He had to explain that one to her then he said "that's a silly question"

It made me think that no it's not a silly question but my sister should have asked me
and as I thought I realised that if my sister truly knows me, she wouldn't needed to have asked.

The question did bring back memories of when I first met my birth parents and their own families.
I was 16 when I met my birth parents and the hardest thing for me to deal with was the expression in their eyes (I'm so sorry) every time they looked at me.
There was alot of guilt from both my parents and before we could move forward and build a relationship, they had to get past their guilts.
Sometimes people dispite their best intentions, they end up hurting you. My birth parents made me feel guilty because they felt guilty. So everytime I saw the look, it reminded me that I was hurting them.
It took awhile but by talking through our feelings and issues we were able to accept each other's thoughts and feelings on Thalassaemia and then move on.
I accept how they feel and they accept that I'm normal.
Now 20 years later I have a solid relationship with both parents and when we talk about Thalassaemia its just part of the conversation. Nothing more or less.
I've always believed that I have a normal life. I can't miss what I've never had, so I don't.

[caraiti]

Found this in my hand therapist office.
Some of it I believe in.


Attitude....
is Everything

Attitude is the way you think.
Your attitude is something other people can actually see.
They can hear it in your voice, see it in the way you move, feel it when they are with you.
Your attitude expresses itself in everything you do, all the time, where ever you are.

Positive attitudes always invite positive results.
Negative attitudes always invite negative results.

Attitude makes a difference every hour, every day, in everything that you do for your entire life.
What you get out of each thing you do, will equal the attitude you have when you do it.

Anthing you do with a positive attitude will work for you.
Anything that you do with a negative attitude will work against you.

If you have a positive attitude, you are looking for ways to solve the problems that you can solve and you are letting go of the things over which you have no control.

You can develop a positive attitude by emphasizing the good, by being tough minded and by refusing defeat.

[smartusha]

Nice post!!  caraiti, most of your posts are very nice to read!!

[caraiti]

The people at the hospital
They're working in together
Doing what they can
to help to make you better.
They don't always get it right...
there are times when they are stressed
but, they always strive to give you
their service at their best.

Each person is important
Each person has their task
To do all that they're meant to do
and all that they are asked.
Not one without the other...
could do their job effectively
It's working as a team
that meets the patient's needs.

So lets appreciate...
those who work for our good health
to make their jobs as easy..
for don't we want their help?
To do what we are asked
without grumble or complaint.
To always be on time
never tardy or late.
To endeavour to be honest
telling all the truth
so thay can better help us
that we, may speedily improve.
If we're worried
and we're frightened
to tell them that they know
they need to sit and talk
to calm our fear and woe.

So be a helpful patient
That is what I ask you do.
To help them do their job
in restoring health to you.

Haydee Muir
1997

[caraiti]

Nice friend
You and I were born with Thalassaemia, it wasn't our choice.
But we have found our way and taken life on, no matter what stands in our way.
Not all of us can make a living by doing a job.... living is our number one job.

Tell us how you cope with the transfusion?
How do u cope?
When did u discover u had thal
What is your diagnosis.
All this is interesting to the members of the forum.

[tony1111]

Nice friend
You and I were born with Thalassaemia, it wasn't our choice.
But we have found our way and taken life on, no matter what stands in our way.
Not all of us can make a living by doing a job.... living is our number one job.

Tell us how you cope with the transfusion?
How do u cope?
When did u discover u had thal
What is your diagnosis.
All this is interesting to the members of the forum.

Yes indeed! I am waiting for Nice Friend to share his/her experience here. I hope in future more thalassemia patients will be here.

P/S: Caraiti, you have done a great job here. I am praying for you everyday. May God give you THE BEST in your life. Do not forget to update us your latest condition here.

Respect from Me,

Tony.

[caraiti]

Thank you Tony1111
Nice friend is abit like me... he finds it hard to write about himself as we feel there is nothing special with what we do.
Thalassaemia is thalassaemia to us.
Maybe you can all help by posting topics that you would like to know about.
From a personal note... Thank you Tony1111 for your thoughts and comments.
It makes me feel good that I am on the right track with you all.
I will keep you posted always.
Kind regards